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Weaver Syndrome Network
a/k/a: WSN
Address
4357 153rd Avenue
SE
Belluvue, WA 98006
USA
Phone
425-747-5382
Fax
425-235-6225
800 Number
--
TDD
--
Email Address
dpmayer@msn.com
The Weaver Syndrome Network (WSN) is a voluntary advocacy organization dedicated to providing support and information to families and caregivers of individuals with Weaver syndrome. This is a rare disorder characterized by faster than normal physical growth and bone development, distinct facial abnormalities, and developmental delays. Established in 1995, as support for families with children having Weaver syndrome, the Weaver Syndrome Network is a grassroots organization committed to establishing a network for affected individuals and developing comprehensive information on treatment options. The group also makes recommendations for optimal education and physical and social development are also made by the group. The organization supports ongoing medical research to determine the underlying cause of Weaver syndrome.
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