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Epidermolysis Bullosa Action Network
a/k/a: EBAN
Address
16613 Milan De Avila
Tampa, FL 33613
Phone
813-325-1955
Email Address
silvia@ebanusa.org
Website
The Epidermolysis Bullosa Action Network (EBAN, Inc.) is a voluntary, non-profit organization whose mission is to improve the financial quality and emotional stability of patients with epidermolysis bullosa (EB) and their families. EB refers to a group of rare, inherited skin diseases characterized by recurring painful blisters and open sores, often in response to minor trauma, as a result of the unusually fragile nature of the skin. Some severe forms may involve the eyes, tongue, and esophagus, and some may produce scarring and disabling musculoskeletal deformities.
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