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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

International Hydranencephaly Support Group

a/k/a: IHSG

Address

11634 203rd Street
Maple Ridge BC, V2X 4T9
Canada

Phone

604-459-8691

Email Address

angelbearmom@shaw.ca

Website

http://www.hydranencephaly.com

The International Hydranencephaly Support Group (IHSG) is a voluntary organization whose purpose is to provide information and support to families of children who have hydranencephaly. IHSG also strives to educate medical professionals as to the potential of children with this condition. Hydranencephaly is a central nervous system disorder characterized by an enlarged head and neurological deficits. The exact cause of hydranencephaly is not known. This extremely rare form of hydrocephalus involves the absence of portions of the brain. Results of neurologic examination in newborns may be normal or abnormal. The head usually appears enlarged at birth. Vision impairment, lack of growth and intellectual deficits are symptomatic of this disorder.

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