The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
United States Adult Cystic Fibrosis Association, Inc.
Gresham, OR 97030-0519
The United States Adult Cystic Fibrosis Association, Inc. (USACFA) is a voluntary, non-profit organization whose mission is to publish a quarterly newsletter to facilitate the exchange of information among adults with cystic fibrosis (CF), foster a nationwide network of support groups for adults with CF, and sponsor/collaborate on regional conferences in the United States for the exchange of information between the medical and research community and adults with CF. Cystic fibrosis is a genetic disease in which, because of a defective gene, mucus-secreting glands within the lining of the lung’s airways (bronchi) produce unusually thick, sticky secretions. This clogs the air passages, promotes bacterial growth, and leads to chronic obstruction, inflammation, and infection of the airways. These thick secretions also obstruct the pancreas, keeping digestive enzymes from reaching the intestines to help break down and absorb food.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.