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Bonpland 1964- Dto 3 PA (1414) Ciudad Autónoma
The Fundación FOP is a non-profit organization whose mission is to promote research and the improvement of persons with fibrodysplasia ossificans progressiva (FOP). FOP is a very rare inherited connective tissue disorder characterized by the abnormal development of bone in areas of the body where bone is not normally present (heterotopic ossification), such as the ligaments, tendons, and muscles. Specifically, this disorder causes the body’s skeletal muscles and soft connective tissue to undergo a transformation into bone, progressively locking joints in place and making movement difficult or impossible. Fundación FOP was created for two main purposes: to help improve the quality of life of people affected by FOP in Argentina, as well as to promote and collaborate with FOP research for finding the cure or an effective treatment to control the progression of the condition; to execute activities to raise the issue of rare and genetic diseases in the public agenda in Argentina, in order to promote public policies aimed at bettering the situation of people directly affected as well as their families.
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