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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Caring for Loin Pain Hematuria Syndrome

a/k/a: CLPHS

Address

PO Box 187
Woodstock, MD 21163

Phone

410-615-4117

Email Address

nutmom2008@caring4lphs-fmd.com

Website

http://www.caring4lphs-fmd.com

The Caring for Loin Pain Hematuria Syndrome (CLPHS) is working to create awareness and bring together doctors/research teams to help with this disorder. LPHS is also opening communication with patients around the world who have this disorder, so that they can work together to help find a cure. LPHS is a rare disorder involving severe loin pain and blood in the urine. Kidney dysfunction is also frequent. Currently, they are trying to raise money to support research on LPHS at the University of Maryland.

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