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Caring for Loin Pain Hematuria Syndrome
PO Box 187
Woodstock, MD 21163
The Caring for Loin Pain Hematuria Syndrome (CLPHS) is working to create awareness and bring together doctors/research teams to help with this disorder. LPHS is also opening communication with patients around the world who have this disorder, so that they can work together to help find a cure. LPHS is a rare disorder involving severe loin pain and blood in the urine. Kidney dysfunction is also frequent. Currently, they are trying to raise money to support research on LPHS at the University of Maryland.
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