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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Dravet.org

a/k/a: IDEA

Address

PO Box 217
Afton, MN 55001-0217
USA

Email Address

info@Dravet.org

Chapters

2

Website

http://www.dravet.org

The Dravet.org is a voluntary, non-profit organization whose mission is to promote awareness and research about Dravet syndrome and related genetic, febrile sodium channel epilepsies. Dravet.org also provides resources and support to improve the quality of life for affected individuals and families. Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a progressive childhood neurodevelopmental disorder characterized by intractable seizures.

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