You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Maddi's Hope

a/k/a: MH

Address

P.O. Box 7445
Rochester, MN 55903

Phone

507--25-4-9050

Email Address

maddishope@yahoo.com

Website

http://www.abernethymalformation.blogspot.com

The Maddi's Hope is a non-profit organization whose mission is to share information and communication about Abernethy Malformation. Abernethy Malformation is a rare anomaly of the splanchnic venous system. Mesenteric and splenic venous blood bypasses the liver and drains into the renal veins or directly into the inferior vena cava.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.