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Parry-Romberg Syndrome Resource, Inc.
4815 Crystal River Ct
Indianapolis, IN 46240
The Parry-Romberg Syndrome Resource, Inc., is a voluntary, non-profit organization dedicated to providing awareness of Parry-Romberg Disease. They provide information to support and educate the community, particularly Parry-Romberg patients, their families, and medical professionals. Parry-Romberg syndrome is a rare disorder characterized by slowly progressive degeneration (atrophy) of the soft tissues of half of the face (hemifacial atrophy).
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