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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Parry-Romberg Syndrome Resource, Inc.

a/k/a: PRSRI

Address

4815 Crystal River Ct
Indianapolis, IN 46240
USA

Phone

317-566-8149

Email Address

prsresource@comcast.net

Website

http://www.prsresource.com/

The Parry-Romberg Syndrome Resource, Inc., is a voluntary, non-profit organization dedicated to providing awareness of Parry-Romberg Disease. They provide information to support and educate the community, particularly Parry-Romberg patients, their families, and medical professionals. Parry-Romberg syndrome is a rare disorder characterized by slowly progressive degeneration (atrophy) of the soft tissues of half of the face (hemifacial atrophy).

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