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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

MSS Research Foundation (Marshall-Smith Syndrome)

a/k/a: MSSRF


Oeverbiesstraat 20
The Hague, NL 2548 WP
The Netherlands



Email Address


The MSS Research Foundation (Marshall-Smith Syndrome) is a non-profit organization whose mission is to finance and stimulate scientific research into the Marshall-Smith Syndrome (MSS). MSS Research Foundation also provides information on this syndrome to a wide audience and supports parents with a child with MSS worldwide. The foundation aims to realize its objectives by applying its efforts worldwide to research into the cause and treatment of MSS, to inform the public about MSS and to issue donations from funds to be acquired by the foundation and other income to University and Research Centre research projects both in and outside the Netherlands. Marshall-Smith Syndrome is characterized by unusually quick physical growth and bone development (maturation), usually starting before birth. Other symptoms can include respiratory difficulties, mental retardation, and certain physical characteristics.

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