You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Muscular Dystrophy Association of Kosovo

a/k/a: MDAK

Address

Str"Ardian Krasnici N:6/22
Prishtina, 10000
Republic of Kosovo

Phone

381-382-47721

Fax

381-382-47721

Email Address

gimi_mda@yahoo.com

Chapters

3

The Muscular Dystrophy Association of Kosovo is a non-profit organization whose mission is to fight discrimination against people with Duchenne muscular dystrophy and to encourage better integration of these people into society and the workplace . It aims to accomplish this with seminars and through a campaign in the media. Duchenne muscular dystrophy (DMD) is a rare muscle disorder that is characterized by weakness and wasting (atrophy) of the muscles of the pelvic area followed by the involvement of the shoulder muscles. As the disease progresses, muscle weakness and atrophy spread to affect the trunk and forearms and gradually progress to involve additional muscles of the body.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .