The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
St. Piers Lane
Surrey, RH7 6PW
2 to 10
The Matthew's Friends is a voluntary, non-profit organization dedicated to providing information, training, support and education on all aspects of dietary treatments for epilepsy for both professionals and patients. They specialize in this one area and work with some of the worlds leading experts in this field. Matthew's Friends aims to make these dietary treatments available to all those who have drug resistant epilepsy. Epilepsy is a group of disorders of the central nervous system characterized by repeated convulsive (paroxysomal) electrical disturbances in the brain. The major symptoms may include loss of consciousness, convulsions, spasms, sensory confusion and disturbances in the nerves that control involuntary body functions (autonomic nervous system). Episodes of these symptoms are frequently preceded by an "aura." An aura is described as a feeling of uneasiness or sensory discomfort that precedes the onset of a seizure. In certain patients the likelihood of having a seizure increases with stress, fatigue, insufficient food intake and/or the failure to take prescribed medications.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.