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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Sjogren's Syndrome Foundation, Inc.
a/k/a: SSF
Address
6707 Democracy Blvd
Suite 325
Bethesda, MD 20817
Phone
301-530-4420
Fax
301-530-4415
800 Number
800-475-6473
TDD
--
Email Address
tms@sjogrens.org
Chapters
4
Website
The Sjögren’s Syndrome Foundation is an international, non-profit organization founded in 1983 to serve the needs of people affected by Sjögren’s syndrome. Sjögren’s syndrome, a disorder of unknown cause, is characterized by deficient moisture production of the mucous-secreting glands, particularly the tear ducts of the eyes (lacrimal) and the salivary glands of the mouth. Primarily affecting middle-aged women, it is thought to be due to an abnormal autoimmune response. The mission of the foundation is to support and educate individuals affected by Sjögren’s syndrome and their families; educate healthcare professionals and the general public about the disorder; and stimulate interest in research toward improved treatments and an eventual cure. In addition, the Sjögren’s Syndrome Foundation provides referrals to physicians, local chapters, and to support groups. The foundation offers postgraduate and student fellowships, and conducts comprehensive symposia on Sjögren’s syndrome. Regional chapters and support groups conduct smaller regional and local gatherings. The Sjögren’s Syndrome Foundation produces an extensive array of educational and support materials.
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