You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Sjogren's Syndrome Foundation, Inc.

a/k/a: SSF

Address

6707 Democracy Blvd
Suite 325
Bethesda, MD 20817

Phone

301-530-4420

Fax

301-530-4415

800 Number

800-475-6473

TDD

--

Email Address

tms@sjogrens.org

Chapters

4

Website

http://www.sjogrens.org

The Sjögren’s Syndrome Foundation is an international, non-profit organization founded in 1983 to serve the needs of people affected by Sjögren’s syndrome. Sjögren’s syndrome, a disorder of unknown cause, is characterized by deficient moisture production of the mucous-secreting glands, particularly the tear ducts of the eyes (lacrimal) and the salivary glands of the mouth. Primarily affecting middle-aged women, it is thought to be due to an abnormal autoimmune response. The mission of the foundation is to support and educate individuals affected by Sjögren’s syndrome and their families; educate healthcare professionals and the general public about the disorder; and stimulate interest in research toward improved treatments and an eventual cure. In addition, the Sjögren’s Syndrome Foundation provides referrals to physicians, local chapters, and to support groups. The foundation offers postgraduate and student fellowships, and conducts comprehensive symposia on Sjögren’s syndrome. Regional chapters and support groups conduct smaller regional and local gatherings. The Sjögren’s Syndrome Foundation produces an extensive array of educational and support materials.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.