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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Familial Dysautonomia Now Foundation

a/k/a: FDNF


1170 Green Knolls Drive
Buffalo Grove, IL 60089





Email Address


The Familial Dysautonomia Now Foundation (FD NOW) is a voluntary, non-profit organization that was founded to raise funds to support research that will drive better treatments and cures for familial dysautonomia (FD). Specifically, FD NOW’s goal is to deliver the next safe, natural substance to the FD community by funding the fast-track research at the Laboratory for Familial Dysautonomia Research at Fordham University in New York, USA. FD NOW also provides support to and advocacy for FD families and promotes education and awareness to the medical community and public. FD is a rare, fatal, genetic, neurological disease present at birth. Kids with FD live in very unstable bodies. All their internal functions are unpredictable. They are prone to wide swings in blood pressure and heart rate, rapid decline of oxygenation and life-threatening autonomic crisis.

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