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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
SistaMoon Foundation
a/k/a: SMF
Address
1438 Hometown Avenue
Henderson, NV 89074
Phone
702-502-9685
800 Number
800-874-2185
Email Address
sistamoonfoundation@yahoo.com
Website
http://www.sistamoonfoundationfordevicsdisease.org
The SistaMoon Foundation is a non-profit organization whose mission is to raise awareness of Devic's Disease. SistaMoon Foundation also raises funds for research and offers support for individuals diagnosed and affected by this rare disease. They advocate for Devic’s survivors who cannot advocate for themselves and help to educate by providing information from some of the leading researchers and doctors who have a vast knowledge of this disease. Devic's Disease, also known as Neuromyelitis Optica (NMO), is a chronic disorder of nerve tissue characterized by inflammation of the optic nerve (optic neuritis) and inflammation of the spinal cord (myelitis). There appear to be two forms of this disease. In the classical, but less common type, there is a series of attacks over a short period of time (days or weeks) but, after the initial outburst, there are seldom repeat incidents. The second form is more common and is characterized by repeated attacks separated by periods of remission. In this form, the interval between attacks may be weeks, months or years. In its early stages, Devic’s disease may be confused with multiple sclerosis.
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