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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Jacob's Cure (Deleted)

a/k/a: JC

Address

PO Box 52
Rye, NY 10580

Phone

914-502-4249

Fax

914-925-3979

Email Address

info@jacobscure.org

Website

http://www.jacobscure.org

The Jacob's Cure is a non-profit foundation dedicated to raising the funds necessary to cure Canavan disease, a rare genetic neurological disorder characterized by the spongy degeneration of the white matter in the brain that affects children at birth. Since its inception in September, 2000, Jacob's Cure allocates 95% of monies raised to research in gene therapy, stem cell transplantation, pharmacological approaches and basic science in understanding the disease. Their efforts have resulted in successful gene therapy trials and pharmaceutical interventions that have, in most cases, stopped the progression of this quickly deteriorating disorder in children afflicted with Canavan disease worldwide. In addition, Jacob's Cure is responsible for creating/funding the Canavan Research Lab at UMDNJ (University of Medicine and Dentistry of New Jersey) under the direction of Dr. Paola Leone. The efforts at the Canavan Research Lab focus solely on research and intervention that will save the children dying of Canavan today.

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