You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Global Fibrosis Foundation

a/k/a: GFF

Address

250 Main Street
Suite 425775
Cambridge, MA 02142

Phone

727-433-8180

Email Address

globalfibrosis@gmail.com

Website

http://www.globalfibrosis.com

The Global Fibrosis Foundation is a non-profit organization whose mission is to help educate patients, families and the medical community about nephrogenic systemic fibrosis and other organ specific fibrosing processes; to support research into prevention and treatment; and to advocate on behalf of patients. Nephrogenic systemic fibrosis (NSF) is a systemic disorder that occurs in some patients with kidney disease in which fibrous tissues develop within the connective tissues of the skin, eyes, internal organs and joints. Gadolinium-based MRI contrast agents are theorized to be a possible trigger for NSF.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .