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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

PNH Research and Support Foundation

a/k/a: PNHRSF

Address

PO Box 10983
Rockville, MD 20849

Phone

888-582-9993

Fax

888-582-9993

800 Number

888-582-9993

Email Address

info@pnhfoundation.org

Chapters

1

Website

http://www.pnhfoundation.org

The PNH Research and Support Foundation is a voluntary, non-profit organization dedicated to funding research to find a cure and new treatments for paroxysmal nocturnal hemoglobinuria (PNH) and to helping PNH patients in need with funding for disease-related expenses not covered by insurance. The foundation also helps to maintain an online support group at www.pnhdisease.org. PNH is a rare, acquired stem cell disorder. The classic finding is the premature destruction of red blood cells (hemolysis), leading to the release of the red blood cell contents into the blood stream which is responsible for many of the symptoms of the disease.

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