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a/k/a: Acromegaly Community
432 Amherst Street, 2nd Floor
Buffalo, NY 14207
The Acromegaly Community is a voluntary, non-profit organization whose mission is to provide an emotional and communal support network for people touched by acromegaly. They offer a central location of medical information on issues including surgery, medication, radiation, and post-diagnosis support. Most importantly, they provide a network of emotional support for acromegaly patients, as well as their friends and family. Acromegaly is a rare, slowly progressive chronic disorder characterized by an excess of growth hormone. Symptoms include abnormal enlargement in bones of the arms, legs, and head. The bones in the jaws and in the front of the skull are typically the most affected. Acromegaly may also cause thickening of the soft tissues of the body, particularly the heart and accelerated growth leading to tall stature. In most cases, acromegaly is caused by the growth of a benign tumor (adenoma), affecting the pituitary gland.
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