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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Simons VIP Connect
a/k/a: simonsVipConnect
Address
2165 N. Decatur Rd.
Rm 211
Atlanta, GA 30033
Phone
404-778-3213
Fax
404-778-8559
800 Number
888-493-6682
Email Address
coordinator@simonsvipconnect.org
Website
http://www.simonsvipconnect.org/
The Simons VIP Connect is a non-profit, online community for individuals with 16p11.2 deletions or duplications and their families. Their goal is to allow families to communicate with one another and provide access to cutting edge clinical and research information. Individuals with 16p11.2 deletions are missing a specific section in one of their two chromosome 16’s. Those with 16p11.2 duplications have a specific extra section in one of their two chromosome 16’s.
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NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.



