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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Benign Essential Blepharospasm Canadian Research Foundation, Inc.

a/k/a: BEBCRF

Address

78 Andrew Park
Woodbridge, Ontario
Canada

Phone

905-264-0708

800 Number

866-890-2473

Email Address

bebcrf@blepharospasm.ca

Chapters

3

Website

http://www.blepharospasm.ca

The BEB Canadian Research Foundation (BEBCRF) is a non-profit organization whose mission is to provide solace and information to those afflicted with benign essential blepharospasm (BEB), Meige syndrome and hemifacial spasm by fostering the foundation and maintenance of support groups throughout Canada. They promote public awareness and raise money for research for the finding of a cure for these debilitating diseases. BEB is a rare neurological disorder in which affected individuals experience involuntary muscle spasms and contractions of the muscles around the eyes. Meige syndrome is a rare neurological movement disorder characterized by involuntary and often forceful contractions of the muscles of the jaw and tongue (oromandibular dystonia) and involuntary muscle spasms and contractions of the muscles around the eyes (blepharospasm). Hemifacial spasm is a benign, uncontrollable twitching of the muscles on one half of the face.

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