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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Metatropic Dysplasia Around the World

Address


Website

http://www.metatropicdysplasia.org

The Metatropic Dysplasia is a rare dysplasia characterized in infancy by a long trunk and short extremities. However, later in life these proportions become reversed and patients now have long extremities and short torsos. The Metatropic Dysplasia Around the World website provides answers and support to those who have received an MD diagnosis.

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