The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
AKU Society of North America
a/k/a: AKU Society
10451 Roselle Street #300
San Diego, CA 92121
The AKU Society of North America is a non-profit organization that focuses on improving the quality of life of alkaptonuria (AKU) patients and their families by providing education, resources, and opportunities for interaction of patients, families, and physicians associated with AKU. They aim to raise funds for support, research, education, and meetings to advance knowledge of the disease and possibilities for treatment of AKU. AKU is an inherited, rare, genetic disorder of the metabolism. It causes homogentisic acid to build up in the blood and tissues and most often leads to joint pain, cartilage damage, and kidney stones.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.