The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
European Network for Ichthyosis (ENI)
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The European Network for Ichthyosis (ENI) is a non-profit, voluntary alliance representing the European support groups for ichthyosis. Their main goal is to give a voice to all ichthyosis patients in Europe while disseminating information about therapy and care. Ichthyosis is a general term for a family of rare genetic skin diseases characterized by dry, thickened, scaling skin.
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