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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
ROHHAD Fight Inc.
a/k/a: Rohhad Fight Inc.
Address
3 Surrey Lane
Hempstead, NY 11550
Phone
516-459-6960
Fax
516-483-0566
Email Address
rohhadfight@aol.com
Website
ROHHAD Fight Inc is a non-profit organization that works to expand knowledge of ROHHAD (Rapid-Onset Obesity with Hypothalamic Dysfunction, Hypoventilation and Autonomic Dysregulation Presenting in Childhood), advance treatment, discover a cure, enhance the quality of life of the ROHHAD children and ease the financial burden of families who have children suffering from ROHHAD. Rapid-onset obesity with hypothalamic dysfunction, hypoventilation, and autonomic dysregulation (ROHHAD) is a rare disorder with abnormalities in breathing (hypoventilation), the endocrine system, and the autonomic nervous system (ANS).
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