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Liam's Land Organization, Inc
P.O. Box 5715
Savannah, GA 31414
Liam's Land Organization is a non-profit 501(c)(3) group who's goal is to advance the research and identify possible causes of lymphatic malformation by establishing a patient registry and funding further genetic testing and clinical trials. Lymphatic malformations (LM's) are abnormal channels and cysts filled with clear lymphatic fluid. LM’s can cause macroglossia, and thickening of the tongue, which can block airway and cause speech/eating complications. Other complications include facial deformations and many patients require a tracheostomy to provide a patent airway and a feeding tube for nutrition. There are currently several types of treatments for LM’s, however, there is no one "best practice." Multiple surgeries and treatments are common.
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