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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Lysosomal Storage Disorders Support Society

a/k/a: LSDSS

Address

LSD Support Society
C/o Centre for Human Genetics
Bangalore, 560100
India

Phone

099-801-33300

Fax

080- 28-521832

Email Address

contactus@lsdss.org

Website

http://www.lsdss.org/

Lysosomal Storage Disorders Support Society is a nonprofit organization located in India whose mission is to provide information and support to all patients, their families and others with interests in lysosomal storage diseases (LSDs); advocate with the central and state governments and other stakeholders to establish a sustainable health care model for all LSD patients in India; encourage the governments to promote early and accurate diagnosis and screening programs for these diseases; help all treatable LSD patients to get proper treatment in time; share their experiences to create a strong public voice on the issue; ideating for best supportive care and optimum patient outcomes. This would include, but not be limited to, development of mechanisms for rehabilitation, counseling, capacity building and fund raising amongst others activities. Lysosomal storage diseases (LSDs) are a group of about 45 different genetic diseases, each characterized by a specific lysosomal enzyme deficiency.

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