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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

MDS Foundation, Inc (MDS=Myelodysplastic Syndromes)

a/k/a: MDSF

Address

4573 South Broad Street
Suite 150
Yardville, NJ 08620

Phone

609-298-1035

Fax

609-298-0590

800 Number

800-637-0839

Email Address

patientliaison@mds-foundation.org

Website

http://www.mds-foundation.org

The Myelodysplastic Syndromes Foundation was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS. Until the Foundation was set up, no formal working group had been devoted to MDS. Since its inception, we have conducted 11 international symposia in Austria, England, the United States, Spain, Czech Republic, Sweden, France, Japan, Italy, Greece, Scotland, and Berlin. The 13th International Symposium will be held in Washington, DC on April 29-May 2, 2015. A major Foundation effort is our international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to physicians, nurses, pharmacists and patients. In response to the needs expressed by patients, families, and healthcare professionals, we have established patient advocacy groups, research funding, and professional educational initiatives. The MDS Foundation is a publicly supported organization, exempt from federal income tax under section 501(C)(3) of the IRS code.

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