The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Ring14 USA Outreach, Inc.
P.O. Box 4394
Lafayette, IN 47903-0394
Ring14 USA Outreach is a non-profit organization founded by a group of mothers whose children have Ring14 syndrome. We advocate for those affected by rare genetic disorders of the 14th chromosome, from the children who suffer from the symptoms to all the doctors, caregivers, friends, and family who help to care for these children every day. Our organization was inspired by our sister group, Ring14 Italy, which was founded in 2002. Our local organization partners with Ring14 to fund and promote international research collaboration, but we are also able to more effectively raise funds and provide local services like conferences and camps to families for whom extensive travel is not possible. We also work to spread public awareness about Ring14 and other disorders of the 14th chromosome, and to develop our own “Ring14? medical experts here in the States. Ring14 USA Outreach is based in California, but its directors come from all corners of the United States, and we provide support for those affected by 14th chromosomal disorders across North America.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.