You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Campbell Burns Metabolic Trust


3 Merganser Way
Leicestershire, LE67 4DN


44 -(0)- 1530 450668

Email Address


The Campbell Burns Metabolic Trust provides practical and financial support the families of children aged ten and under, living in the UK, who have been diagnosed with a metabolic disorder. Families can apply for grants to help meet the cost of hospital visits, household bills, taking a special day out with their child or sharing a new experience, to buy a breadmaker, or to meet an emergency cost associated with the care of the child with a metabolic condition. We assist families in the UK only and are a registered charity in England and Wales.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .