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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

SSADH Association, Inc.

a/k/a: SSADH


498 Lillian Court
P.O. Box 180622
Delafield, WI 53018





Email Address


The SSADH Association is a 501 (c)(3) organization that assists patients and families who are affected by succinic semialdehyde dehydrogenase deficiency (SSADH). The organizaton's ultimate goal is to help develop treatments and a cure for SSADH through research. The organization administers its own clinical research grant program, and maintains a family and physician registry. SSADH is a rare inborn error of metabolism, characterized by lack of the enzyme, SSADH. Those affected develop an accumulation of the inhibitory neurotransmitter, GABA, leading to major neurological abnormalities.

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