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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Sneddon’s Foundation

Address

211 E 25th St
Apt 1A
New York, NY 10016

Email Address

(contact through website)

Website

http://www.sneddonsyndrome.org

The Sneddon's Foundation (of the U.S) is a 501(c)(3) organization whose mission is to (1) develop a clearinghouse of information on Sneddon's Syndrome in two formats, one for the medical community and one for the community of patients, families, and the general public; (2) to disseminate both types of information through every possible means; to develop a nexus of commmunication about Sneddon's Syndrome within the patient community, within the medical community and across the divide between the two; (3) to encourage and support research on Sneddon's Syndrome in hopes of clarifying both a cause and a cure for this devastating disease. Sneddon's syndrome is a rare progressive disorder affecting the blood vessels characterized by the association of a skin condition and neurological abnormalities. It is characterized by blockages (occlusions) of the arteries that cause a reduction of blood flow to the brain and to the skin. Associated symptoms vary from case to case. The disorder can lead to cardiac problems, kidney problems and/or stroke.

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