You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Pediatric Arachnoid Cyst Foundation

a/k/a: PACF

Address

104 Lou Ave
Denton, MD 21629

Phone

413-206-9471

Email Address

pediatriccyst@gmail.com

Website

http://www.pediatriccyst.org

The Pediatric Arachnoid Cyst Foundation's mission is to bring awareness, support, and continuing research to the medical community. They also aim to support families and patients who have been impacted with a pediatric Arachnoid Cyst diagnosis. Arachnoid cysts are fluid-filled sacs on the arachnoid sacs that cover the brain. In childhood, they can impair vision and coordination. In many cases arachnoid cysts do not cause symptoms (asymptomatic). In cases in which the symptoms occur, headaches, seizures and abnormal accumulation of excessive cerebrospinal fluid in the brain (hydrocephalus) are common.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .