You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

MPN Education Foundation

Address

P O Box 4758
Scottsdale, AZ 85261

Phone

480-443-1975

Fax

480-443-1154

Email Address

r.niblack@cox.net

Website

http://www.mpninfo.org

The Myeloproliferative Neoplasms Education Foundation (MPNEF) was founded in 2004 as a 501c3 organization run by MPN volunteers. It is focused in bringing education, information and support to MPN patients all over the world. This is achieved through MPN-NET, an un-moderated discussion list that addresses patient experiences, psychosocial issues, new research, clinical trials, current treatment practices and alternatives. They also provide educational videos about MPN, a newsletter, and they host a biannual patient conference in conjunction with the Mayo Clinic. MPN is a related group of hematological malignancies in which bone marrow cells responsible for producing red blood in the body malfunction. MPN's can also progress to an agressive blood cancer. Specific MPN conditions include Chronic Myelogenous Leukemia (CML), Essential Thrombocythemia (ET), Myelofibrosis (MF), and Polycythemia Vera (PV).

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.