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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

PRISMS (Parents & Researchers Interested in Smith-Magenis Syndrome)

a/k/a: PRISMS

Address

21800 Town Center Plaza
Suite 266A-633
Sterling, VA 20164
USA

Phone

972-231-0035

Fax

972-499-1832

800 Number

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TDD

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Email Address

info@prisms.org

Website

http://www.prisms.org

The PRISMS (Parents & Researchers Interested in Smith-Magenis Syndrome) is a 501(c)(3) organization, dedicated to providing information and support to families of persons with Smith-Magenis syndrome (SMS) and fostering partnerships with professionals to increase awareness and understanding of SMS. Smith-Magenis syndrome is a rare chromosomal disorder characterized by a specific pattern of physical, behavioral, and developmental features. It is caused by the absence of genetic material (deletion) from a certain region on chromosome 17. Organized and incorporated in the state of Virginia on Feb. 4, 1993, PRISMS, Inc., is governed by a nine-member board of directors. Most board members have children with Smith-Magenis syndrome.

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