The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
PRISMS (Parents & Researchers Interested in Smith-Magenis Syndrome)
21800 Town Center Plaza
Sterling, VA 20164
The PRISMS (Parents & Researchers Interested in Smith-Magenis Syndrome) is dedicated to providing information and support to families of persons with Smith-Magenis syndrome (SMS) and fostering partnerships with professionals to increase awareness and understanding of SMS. Smith-Magenis syndrome is a rare chromosomal disorder characterized by a specific pattern of physical, behavioral, and developmental features. It is caused by the absence of genetic material (deletion) from a certain region on chromosome 17. Organized and incorporated in the state of Virginia on Feb. 4, 1993, PRISMS, Inc., is governed by a nine-member board of directors. Most board members have children with Smith-Magenis syndrome.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.