The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Beautiful You MRKH Foundation, Inc.
13010 Pacific Avenue
Beautiful You MRKH (BYMRKH) supports women and girls with Mayer-Rokitansky-Kuster-Hauser Syndrome by creating a supportive commuity of both patients and healthcare professionals for those affected by this rare congential reproductive disease. BYMRKH has created a sister-to-sister program for peer mentoring. BYMRKH also provides educational resources for both the medical and patient communities about proper treatment and diagnosis of MRKH. The organization also works with medical professionals to conduct research for future treatments and cures. MRKH is a rare condition that causes an incomplete development of the female reproductive tract It affects approximately 1 in 4,000-5,000 women. The results of MRKH are misplaced ovaries and failure to menstruate. Women with this disorder also lack a fully functional uterus and cervix, and can have kidney misplacement, hearing loss, and even heart defects.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.