You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Beautiful You MRKH Foundation, Inc.

a/k/a: BYMRKH


13010 Pacific Avenue
Rockville, MD



Email Address


Beautiful You MRKH (BYMRKH) supports women and girls with Mayer-Rokitansky-Kuster-Hauser Syndrome by creating a supportive commuity of both patients and healthcare professionals for those affected by this rare congential reproductive disease. BYMRKH has created a sister-to-sister program for peer mentoring. BYMRKH also provides educational resources for both the medical and patient communities about proper treatment and diagnosis of MRKH. The organization also works with medical professionals to conduct research for future treatments and cures. MRKH is a rare condition that causes an incomplete development of the female reproductive tract It affects approximately 1 in 4,000-5,000 women. The results of MRKH are misplaced ovaries and failure to menstruate. Women with this disorder also lack a fully functional uterus and cervix, and can have kidney misplacement, hearing loss, and even heart defects.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .