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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Moebius Syndrome Foundation

a/k/a: MSF


PO Box 147
Pilot Grove, MO 65276





800 Number




Email Address




The Moebius Syndrome Foundation is a national, non-profit, voluntary organization, which was founded in 1994. Its mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions. Moebius syndrome is a rare neurological condition characterized by paralysis or paresis of the 6th and 7th cranial nerves resulting in a lack of facial expression (patients can't smile), lack of lateral eye movement and lack of blinking. In some cases other cranial nerves may be involved. The foundation provides a network of information and communication to affected individuals and their families, and seeks to educate the medical community and general public about this disorder. It works with other Moebius foundations around the world to advocate research into the condition. The foundation hosts conferences every two years for people with Moebius, their families and professionals.

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