You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Moebius Syndrome Foundation

a/k/a: MSF

Address

PO Box 147
Pilot Grove, MO 65276
USA

Phone

660-834-3406

Fax

660-834-3407

800 Number

--

TDD

--

Email Address

vicki@moebiussyndrome.com

Chapters

5

Website

http://www.moebiussyndrome.com

The Moebius Syndrome Foundation is a national, non-profit, voluntary organization, which was founded in 1994. Its mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions. Moebius syndrome is a rare neurological condition characterized by paralysis or paresis of the 6th and 7th cranial nerves resulting in a lack of facial expression (patients can't smile), lack of lateral eye movement and lack of blinking. In some cases other cranial nerves may be involved. The foundation provides a network of information and communication to affected individuals and their families, and seeks to educate the medical community and general public about this disorder. It works with other Moebius foundations around the world to advocate research into the condition. The foundation hosts conferences every two years for people with Moebius, their families and professionals.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .