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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Turner Syndrome Society of the United States

a/k/a: TSSUS


11250 West Road, Suite G
Houston, TX 77065





800 Number




Email Address




Established in 1988, the Turner Syndrome Society of the United States is a national non-profit self-help organization dedicated to increasing awareness and understanding of Turner syndrome and providing an active networking program for affected individuals. Turner syndrome is a rare chromosomal disorder in females that is characterized by the absence or abnormalities of one X chromosome. Symptoms may include short stature, lack of sexual development at puberty, a webbed neck, heart defects, and/or other abnormalities. The society makes referrals to appropriate support and treatment centers, and promotes the continuing education of physicians and other healthcare professionals. In addition, the organization supports ongoing medical research and enables individuals with Turner syndrome to exchange information, support, and resources through its networking program. The Turner Syndrome Society also offers a variety of educational materials including a regular newsletter, audiovisual aids and brochures.

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