0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z
**IMPORTANT**
The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Turner Syndrome Society of the United States
a/k/a: TSSUS
Address
11250 West Road, Suite G
Houston, TX 77065
Phone
832-912-6006
Fax
832-912-6446
800 Number
800-365-9944
TDD
--
Email Address
tssus@turnersyndrome.org
Chapters
38
Website
Established in 1988, the Turner Syndrome Society of the United States is a national non-profit self-help organization dedicated to increasing awareness and understanding of Turner syndrome and providing an active networking program for affected individuals. Turner syndrome is a rare chromosomal disorder in females that is characterized by the absence or abnormalities of one X chromosome. Symptoms may include short stature, lack of sexual development at puberty, a webbed neck, heart defects, and/or other abnormalities. The society makes referrals to appropriate support and treatment centers, and promotes the continuing education of physicians and other healthcare professionals. In addition, the organization supports ongoing medical research and enables individuals with Turner syndrome to exchange information, support, and resources through its networking program. The Turner Syndrome Society also offers a variety of educational materials including a regular newsletter, audiovisual aids and brochures.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.
