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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
IDEAS (IsoDicentric 15 Exchange, Advocacy and Support)
a/k/a: IDEAS
Address
PO Box 674
Fayetteville, NY 13066
USA
Fax
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800 Number
877-433-2715
TDD
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Email Address
info@dup15q.org
Website
The IDEAS (IsoDicentric 15 Exchange Advocacy and Support) is a network of parents and professionals providing information and support to families of children and adults diagnosed with IsoDicentric 15 or other abnormalities of chromosome 15. It was founded in 1994 to support families of children with an IsoDicentric 15 (also called Inverted Duplication of Chromosome 15) and the healthcare professionals who work with them. IsoDicentric 15 is a rare chromosomal disorder that may result in mental retardation, seizures and neurological problems, and autistic-like behaviors. The group also functions as an advocate for children and adults affected by this chromosomal disorder. IDEAS publishes a newsletter entitled "The Mirror" that offers information on current research along with family profiles. The organization provides current information on this disorder and offers support to affected families and other interested individuals. There is also a web site, which provides current information and resources.
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