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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Chromosome 18 Registry & Research Society

a/k/a: C18RRS


7155 Oakridge Drive
San Antonio, TX 78229





800 Number




Email Address


The Chromosome 18 Registry & Research Society is a non-profit self-help organization dedicated to maintaining a registry of individuals affected by chromosome 18 abnormalities; educating affected families and the public; and encouraging, conducting, and publishing research in areas impacting affected families. The society seeks to link affected families and their physicians to the research community. Established in 1990, the Chromosome 18 Registry & Research Society promotes patient advocacy, provides phone support to affected families, offers appropriate referrals, promotes research and offers educational and support materials. Information is found in our web site, list serves, memos, newsletter, reports, scientific research updates and brochures.

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