You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Parent Project Muscular Dystrophy

a/k/a: PPMD


401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601





800 Number




Email Address




The Parent Project Muscular Dystrophy (formerly the Parent Project for Muscular Dystrophy Research) is a non-profit national health organization founded in 1994 by parents of children with Duchenne and Becker muscular dystrophy. PPMD's mission is to improve the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education, and compassion. PPMD seeks to ensure that all families, caregivers, and healthcare professionals have access to current information about treatment and care options for children with DMD/BMD. It encourages health and human services policy makers to afford the same priority to DMD/BMD as to other disorders of similar incidence and prevalence. PPMD seeks to collaborate with the international community to assure that the voices of people with DMD/BMD are heard.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .