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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

HHT Foundation International, Inc.

a/k/a: HHT Foundation


P.O. Box 329
Monkton, MD 21111
United States





800 Number




Email Address




The HHT Foundation International, Inc., is a non-profit organization dedicated to increasing public and professional awareness and understanding of hereditary hemorrhagic telangiectasia (HHT), also known as Osler Weber Rendu syndrome. This is an inherited vascular (blood vessel) disorder characterized by direct connections between arteries and veins with no intervening capillaries, or by the dilation of small vessels. These telangiectases occur in various organs of the body such as the lungs, brain, liver, GI tract, nose, mouth, lips, fingers and toes. The HHT Foundation supports ongoing medical research into the causes, prevention, and treatment of HHT, and offers patient education materials and referrals from a web site and through a toll-free number and an international number. Educational information for medical professionals and for patients is available by mail, via the web site and by newsletter.

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