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Children's Tumor Foundation
a/k/a: CTF
Address
95 Pine Street
16th Floor
New York, NY 10005-4002
Phone
212-344-6633
Fax
212-747-0004
800 Number
800-323-7938
TDD
212-344-6633
Email Address
info@ctf.org
Chapters
26
Website
The Children's Tumor Foundation (CTF) Ending Neurofibromatosis Through Research, formerly known as the National Neurofibromatosis Foundation, is a not-for-profit, voluntary organization dedicated to improving the well-being of individuals and families affected by neurofibromatosis type I (NF1) and type II (NF2). NF1 is a rare inherited disorder characterized by the development of multiple benign tumors on the covering of nerve fibers and the appearance of brown spots and freckles on the skin. NF2 is a rare inherited disorder characterized by the development of benign tumors on both auditory nerves and in other areas of the body. Established in 1978, the foundation is dedicated to sponsoring scientific research aimed at finding the causes and cures for the neurofibromatoses, promoting the development of clinical activities, creating public awareness, and providing patient support services. In addition, NNFF promotes education of healthcare professionals, offers patient advocacy, and provides referrals to genetic counseling and support groups. It offers information through its directory, database, pamphlets, newsletters, handbooks, and audio-visual aids. The foundation supports several languages including English, Spanish, French, Italian, Vietnamese, Turkish, Arabic, Greek and Chinese.
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