You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Sudden Arrhythmia Death Syndromes Foundation

a/k/a: SADS

Address

508 E. South Temple
Suite 202
Salt Lake City, UT 84102
USA

Phone

801-531-0937

Fax

801-531-0945

800 Number

800-786-7723

TDD

--

Email Address

laura@sads.org

Chapters

3

Website

http://www.sads.org

The SADS Foundation - Sudden Arrhythmia Death Syndromes Foundation (SAD) is a national, non-profit organization that was established in 1991. Its mission is to save the lives of children and young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities. The foundation is dedicated to increasing the general publics knowledge of the warning signs of heart rhythm abnormalities that can cause sudden death in the young. SADS provides information, resources, and support to assist patients and families to make informed medical decisions and to live with the challenges of these conditions. SADS serves as a physician referral resource center and facilitates several family support groups and a person-to-person networking program. The foundation also seeks to provides advice to physicians who care for people with long qt syndrome. In addition, the foundation is interested in the identification of individuals and families at risk for these diseases and in assisting families of those affected. SADS facilitates several family support groups and a person-to-person networking program.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .