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Chromosome 9P- Network
a/k/a: Chromosome 9P
Address
P.O. Box 524
Appleton, WI 54912
USA
800 Number
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TDD
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Email Address
9pminusinfo@gmail.com
Website
The Chromosome 9p- Network (9P) is a 501(c)(3) voluntary, non-profit organization dedicated to providing information and support to parents of children with 9p- syndrome and healthcare professionals who work with affected individuals. 9p- syndrome is a rare chromosomal disorder caused by a partial deletion of the short arm (p) of chromosome 9. The disorder may be characterized by abnormalities of the head and face, a short neck, widely spaced nipples, genital abnormalities, low muscle tone and/or moderate mental retardation. Established in the mid-1980s, the network is dedicated to educating affected individuals and family members, professionals, and the general public. It also supports and promotes research, provides appropriate referrals, and offers a variety of educational and support materials, including reports and brochures.
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