You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Severe Chronic Neutropenia International Registry

a/k/a: SCN International Registy


Severe Chronic Neutropenia International Registry
University District Building
Seattle, WA 98105





800 Number




Email Address




Established in March of 1994, the Severe Chronic Neutropenia International Registry is a research organization supported by the NIH and directed by an advisory board of physicians who treat individuals with severe chronic neutropenia (SCN). Chronic neutropenia is a blood disorder in which the bone marrow produces a decreased number of certain white blood cells known as neutrophils. Abnormally low levels of neutrophils can cause affected individuals to become more susceptible to certain bacterial infections. The mission of the registry is to establish a worldwide database of treatment and disease related outcomes for individuals diagnosed with SCN. It is hoped that the information collected will lead to improved medical care and a focus for future medical research. The registry is international, serving patients and healthcare practitioners located in the United States, Canada, Europe, Australia, South America, Asia, and the Middle East.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .