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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Dystrophic Epidermolysis Bullosa Research Association of America, Inc. (DEBRA)

a/k/a: DEBRA

Address

75 Broad Street
Suite 300
New York, NY 10004

Phone

212-868-1573

Fax

212-868-9296

800 Number

866-332-7276

TDD

--

Email Address

staff@debra.org

Chapters

8

Website

http://www.debra.org

The Dystrophic Epidermolysis Bullosa Research Association of America (DEBRA) is a national voluntary health organization dedicated to achieving a cure for epidermolysis bullosa (EB) and improving the care and quality of life for people with this disorder and their families. EB is a group of genetic disorders in which there is a defect causing the skin layers to separate and blister either spontaneously or at the slightest friction. Symptoms usually are apparent at or shortly after birth. The association promotes and supports scientific research on the cause, diagnosis, treatment, and cure of this disorder. DEBRA seeks to meet the unique needs of affected individuals and their families through programs that supply information, assistance, support, and guidance. DEBRA is also committed to raising public awareness about the nature of epidermolysis bullosa and to representing the special concerns of affected individuals and their families to government officials. The organization offers a variety of educational materials.

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