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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Stickler Syndrome Support Group

a/k/a: SSSG


PO Box 3351
Littlehampton, BN16 9GB
United Kingdom



800 Number




Email Address


The Stickler Syndrome Support Group (SSG) is a voluntary health organization located in the United Kingdom. The group is dedicated to raising awareness among the general public and medical professionals. Stickler syndrome is a genetic disorder that affects the body's collagen (connective tissue), particularly the joints, eyes, palate, heart, and hearing. The disorder is extremely variable from case to case. It is characterized by possible vision problems, hearing loss, early arthritis, cleft palate, and heart murmurs. The support group offers information and support to affected individuals and families and to professionals with an interest in Stickler syndrome, and produces a range of publications on different aspects of the disorder. Through the group's quarterly newsletter, members can share experiences and keep abreast of advances in medical research.

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