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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Prader-Willi Syndrome Association (USA)

a/k/a: PWSA


8588 Potter Park Drive, Suite 500
Sarasota, FL 34238





800 Number




Email Address




The Prader-Willi Syndrome Association (USA) (PWSA) is a non-profit, voluntary health organization. Founded in 1975, the association provides parents and healthcare professionals with a national and international network of information, support services, and research endeavors to expressly meet the needs of children and adults with Prader-Willi syndrome and their families. The organization comprises parents, professionals and other interested individuals who are taking active roles in improving the lives of people with Prader-Willi syndrome. Goals include normalizing life for people with Prader-Willi syndrome and their families, improving communication and education, and acting as a lifetime advocate for affected individuals. The association also supports research, interdisciplinary communication, and increased professional knowledge of treatments. Educational materials include various brochures and pamphlets.

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