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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Vaincre Les Maladies Lysosomales

a/k/a: VLML

Address

2 Ter Avenue
Massy, 91300
France

Phone

016-975-4030

Fax

016-011-1583

800 Number

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TDD

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Email Address

accueil@vml-asso.org

Website

http://www.vml-asso.org

The Vaincre Les Maladies Lysosomales (VLML) is a voluntary, non-profit organization in France dedicated to providing information and support to individuals with lysosomal disorders and their families; improving the quality of life of affected individuals; and promoting and supporting research for these disorders (e.g., Pompe disease, the lipidoses, mucolipidoses, mucopolysaccharidoses, and glycoproteinoses). Established in 1990, Vaincre Les Maladies Lysosomales provides referrals to appropriate support groups; promotes public awareness campaigns; and offers informational conferences and weekend retreats for affected individuals, families, and healthcare professionals. Vaincre Les Maladies Lysosomales also offers a variety of educational materials to affected individuals, family members, and health care professionals including regular newsletters, brochures, books, and videos.

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